Gwasanaeth Gwybodaeth I Deuluoedd - Family Information Service

Angelman Syndrome Support Education and Research Trust (ASSERT) - Family support services


What we do

ASSERT is a UK wide support group run by volunteers who have direct contact with people with Angelman Syndrome. A majority of volunteers are parents or relatives of children or adults with Angelman Syndrome. ASSERT can help in many ways. If you are a parent they can offer advice and support on a wide range of problems. If you are a carer or professional they can offer information based on real life caring experiences. ASSERT produce a regular newsletter, they hold regional meetings in different locations throughout the year, they maintain a 24 hour, seven day a week telephone support line and have established a national register of families indicating those willing to be a point of contact for families of those newly diagnosed with Angelman Syndrome. Angelman Syndrome (AS) is a rare neurological disorder affecting around 1:20,000 births. Characteristic features include delayed development, severe learning difficulties, little or no speech and issues with movement and balance.

Is there a charge to use this service?

No

Can anyone use this service?

Anyone can contact the support line. Patients however must be referred by their GP or other doctor sending a written referral to: Dr Jill Clayton-Smith, Genetic Medicine, 6th Floor St Mary’s Hospital, Oxford Rd, Manchester M13 9WL.

Service details for this family support services

Language: English only

  • Able to support children with disabilities No
  • Are staff DBS checked? No



 Address

 You can send post here:

PO Box 4962
CV11 9FD



Contact methods

Social media

 Accessibility