The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome. The Dancing Eye Syndrome (DES), also known as Opsodonus Myoclonus Syndrome is so called because of the very abnormal eye movements which are almost invariably present in this rare condition.They produce a twice yearly newsletter and run an annual family weekend break.
Anyone can contact us directly
12Granville RoadReadingRG30 3QD