Gwasanaeth Gwybodaeth I Deuluoedd - Family Information Service

Dancing Eye Syndrome Support Group - Family support services

What we do

The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome. The Dancing Eye Syndrome (DES), also known as Opsodonus Myoclonus Syndrome is so called because of the very abnormal eye movements which are almost invariably present in this rare condition.

They produce a twice yearly newsletter and run an annual family weekend break.

Is there a charge to use this service?


Can anyone use this service?

Anyone can contact us directly

Service details for this family support services

Language: English only

  • Able to support children with disabilities Yes
  • Are staff DBS checked? Yes


 You can send post here:

Granville Road
RG30 3QD

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