Angelman Syndrome Support Education and Research Trust (ASSERT) - Family support services
What we do
ASSERT is a UK wide support group run by volunteers who have direct contact with people with Angelman Syndrome. A majority of volunteers are parents or relatives of children or adults with Angelman Syndrome. ASSERT can help in many ways. If you are a parent they can offer advice and support on a wide range of problems. If you are a carer or professional they can offer information based on real life caring experiences. ASSERT produce a regular newsletter, they hold regional meetings in different locations throughout the year, they maintain a 24 hour, seven day a week telephone support line and have established a national register of families indicating those willing to be a point of contact for families of those newly diagnosed with Angelman Syndrome. Angelman Syndrome (AS) is a rare neurological disorder affecting around 1:20,000 births. Characteristic features include delayed development, severe learning difficulties, little or no speech and issues with movement and balance.
Can anyone use this service?
Anyone can contact the support line. Patients however must be referred by their GP or other doctor sending a written referral to: Dr Jill Clayton-Smith, Genetic Medicine, 6th Floor St Mary’s Hospital, Oxford Rd, Manchester M13 9WL.
Service details for this family support services
Language: English medium setting
- Can provide specialist support for families of children with disabilities / additional needs Please contact to discuss your child(s) needs further.
- Relevant staff have a valid current DBS?
Social information
Address
You can send post here:
PO Box 4962
CV11 9FD
Website
https://www.angelmanuk.org/
Contact methods
Telephone: 0300 999 0102
Email: support@angelmanuk.org
Social media
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